Living with Cancer - 2 Years of Treatment

Friday, 23 November 2018

2 years ago today I had my first chemo treatment so I thought it was time for another update on what's happening with me as I continue to undergo cancer treatment.

For those who aren't familiar with my personal story, I have incurable cancer. I was diagnosed at the end of 2016, just 6 months after our 2nd child was born. We relocated to Cheshire after my first round of treatment and I've been under the care of the Clatterbridge Cancer Centre ever since. I am currently on a drug called Kadcyla and I have had 20 rounds of it.

I originally went public with diagnosis in February 2017 and you can read more about this in my original Living with Cancer post. Since my last update after A Year of Treatment, I am in a pretty good place. I've had a year of no changes to my treatment so I know what I'm dealing with each time. My treatment is still every 3 weeks and thankfully I have very few side effects apart from fatigue for about the first week. I know that this is not always the case and others have a whole variety of side effects. I am definitely fortunate. Having looked back, there are very few 'cancer' pictures of me from the last year. I think that just goes to show that other than treatment days, it's having minimal impact on my day to day life.

Following a scan back in May, I found out that there had been slight progression which was so disappointing to hear. I find it so hard to get my head around that this disease is doing it's own thing inside my body and yet I don't have any symptoms. I know this is a very good thing and I dread the time when I start having symptoms. However, after discussion with my amazing Doctor, we decided that I would stay on my current drug and I was more than happy with this as I know this drug and how I feel on it. I just wanted to get to our Wedding at this point!

On 15th September we had our Big Day!! It was such an amazing day and we couldn't have asked for it to be any better. I thought I would an emotional wreck on the day as it's so hard knowing that I will definitely make Mr MoaB a widow at some point in the near future, but instead it was such a happy occasion. We were surrounded by our nearest and dearest. So many people traveled so far to share our day and make it so special. The kids had an absolutely fab day and were so good. We were so proud of them on the day. It's so nice to now share the family name with them. So many happy memories from the day.

The kids continue to keep me going and I am cherishing all the time I am given to see them growing up and their characters developing. Of course, I couldn't get through all this without the support and love of Mr MoaB and I'm so happy to now be his wife. A massive thank you to Mr MoaB for everything.

On 28th September I did a 10 kilometre walk around Liverpool in support of Maggie's. This charity helps and supports people like me with cancer, along with their friends and families. I am lucky that there is a Maggies' Centre at Clatterbridge. Treatment days for me are always really long, sometimes up to 6 hours, most of which is just spent waiting. I spend more time in Maggie's than on the actual treatment ward. It is my haven on these days and keeps me going with the endless supply of tea & biscuits on offer. I have met so many lovely people there, some that are now dear friends. It's somewhere I can talk openly and know that people will understand. I am so grateful that Maggie's is there and the door is always open and I'm so glad I was able to help raise funds for this amazing cause whilst I still feel well and able to participate in the experience. Thank you to all those who sponsored me and helped me to raise over £900.

I continue to surprise people when I tell them about my cancer for the first time. They are always shocked as you really wouldn't have any idea from the outside! That's a good thing. I obviously never look that ill even on my off days! In March I started going to yoga classes again. I've always enjoyed yoga and it's so nice to have a few hours each week where I focus on me.

I have 2 more rounds of treatment this year. My Doctor has postponed any more scans etc. until the New Year for which I am very grateful as it means we can enjoy all the festivities of Christmas without any scanxiety or tough decisions to make about treatment etc. I'm so looking forward to Christmas this year.

So that's where we're at 2 years down the line of having incurable cancer. The majority of the time I go around in my little bubble and it's quite easy to forget I have the horrible disease inside me as I'm so well and able to live life normally. There are times when it hits me like a brick and I have moments of dreading what lies ahead and having to face getting more poorly and leaving everyone behind, but for now I'll stay positive and do what I can to make the memories for Mr MoaB and the kids.

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